I was asked to review the radiotherapy plan for Marie when I noticed on the CT images that her entire left lung was opacified. It turned out to be a haemothorax, as suspected. Her malignancy had resulted in auto-antibodies rendering her clotting system defective.
Two weeks ago I first met Marie in the clinic. She came with her son, daughter and daughter-in-law. They were obviously concerned about their mum and wanted the best, yet they understood there was only so much Medicine can do. Marie was in her fifties, but she did not look so at all. She came in well-groomed; her cheeks and lips were rosy with mild makeup. She had the gentlest speech, and her smiles were small, but frequent and sweet.
Now Marie was on the hospital bed in the trolley bay. No makeup this time — her complexion was pale, her lips grey, her hair messy from prolonged bed-stay. But she was still soft-spoken, and her smiles were still lovely as before.
I slowly explained to Marie what I found. “Things are progressing quite aggressively… And I’m not sure how rapidly this is going to continue,” I said as I watched for her reaction. “I’m really sorry, Marie.”
“That’s ok,” she said with a smile. It was as if she had expected this all along. “As long as the children are ok,” she added in passing. I didn’t quite understand at the time, but my mind drifted, for an instant, to recall the image of her son, daughter and daughter-in-law during the first clinic consult. She passed away the next day in the hospital.
In the same week, I had a conversation with Kenny. Kenny was a young man from Hong Kong. He had a wife Yen, and together they have a 5-year old son, who couldn’t understand yet that his dad was dying from colorectal cancer.
In a matter of days Kenny went from walking to being wheelchair-bound. On the CT images, his whole abdomen was solid with metastases. We knew his wife, brave as she was, was struggling to care for both Kenny and their little child at home. It came the time when I advised for inpatient admission to the palliative unit. It may very well be Kenny’s last destination in this life, and I wanted to make sure he and his wife understood the situation.
I remember his wife was wearing a T-shirt with verses from the book of Phillipians on it. I asked her about it, and it turns out I knew the church they attended. I realized too that when patients have a faith and hope to hold on to, these grim conversations become so much easier. I asked how long have they been in Australia for. It was two years ago when they came with their young son, on a working visa.
“What is it that you do?” I asked Kenny.
“I’m a lecturer at RMIT…”
“Oh what do you lecture on?”
“Building construction,” he replied, then added after a pause, “But all of that doesn’t matter anymore, Joseph.”
I guess that’s true. The following day Kenny’s cancer perforated his bowels. He was transferred to a private hospital, and that was the last I heard of him.
These conversations with Marie and Kenny at their deaths’ door helped me put some things back into perspective.
There was this lady in her sixties. She was admitted just before my 15-hour long shift started. On the wee hours of a Saturday morning.
There was already talk about her even before I met her, as the first most important patient of the morning. Severe bilateral community-acquired pneumonia with a fast downward spiral.
Put on BiPAP, 10/4 setting. A femoral artery stab for blood gases, because her radial pulses were already too weak. Another 18G cannula into her veins. 1 litre of 0.9% sodium chloride solution, stat. The glucometer read 2.0 mmol/L — give her 20mL bolus of 50% dextrose intravenously, now. And an indwelling urinary catheter. Two doctors and three senior nurses danced around her.
Her husband sat beside, in the corner of the room, silent.
And I realized how used to all of this I am already – even joking sometimes as we flashed needles around, shamefully forgetting how scary, and confusing, it must have been for him.
She had a good pre-morbid status, so she would be a candidate for the Intensive Care Unit. We spoke to the ICU consultant. He was a staunch man with a deep voice and a strict face, who hasn’t slept for more than 24 hours. It had been an absolutely crazy Friday night and Saturday morning that we walked ourselves into. He promised an ICU bed for her — but then a child was wheeled into the Emergency Department very sick, and priority was given to the child for the ICU bed, as less would disagree with. The bed was taken. She was now at the ceiling of her care. No more escalation.
We told her husband about this. It was difficult.
And I wondered… how did he think, to know that his wife was terribly ill, and the one thing that would sustain her if she deteriorated — a mechanical ventilator in the Intensive Care Unit — was just not accessible, as the Intensive Care Unit was already full?
What would you think – when you are helplessly slipping towards crossing the moment between having a life partner and no longer having one?
Is this it?? But yesterday she was still fine! I’ve only just done grocery shopping with her yesterday!! Am I not going to see her again, for ever??
What would you say to your life partner during his or her last moments?
Recount all the good times?
Recount all the regrets and mistakes?
Say the things you never could say? Does it still matter?
Grandpa passed away on the day I arrived home just before the last Christmas. It was a weird week that followed, beginning my holidays back home after several years overseas.
Weakly could he still nudge his head when he saw me standing beside his bed that morning, but it was a swift deterioration, and he passed away – so quickly – about nine hours later.
In retrospect, should I have spent more time with him earlier the day? Should I have insisted more strongly for him to be admitted to hospital earlier? I don’t know; in retrospect there will always be many what-if’s and if-only’s. But I’m thankful I arrived home in time when he still had enough consciousness left to recognize me. I know he had always wanted to see me for the years I was away.
In the week that followed with the funeral service and relatives visiting, I realized, too, that there are many things so close, yet not usually talked about.
What other times in our lives do we talk about finding a good and suitable cemetery to buy a spot, in preparation for the future? What other times in our lives are we so open, even in the extended family about life, death and the next generations?
So I suppose I have grown up, my friends are getting married, my parents are soon retiring, and my young cousins now able to walk and talk. The people I have around me – many so very dear – are changing, and will not be around forever. Sometimes this is closer than we think.
Indeed we are all but a mist, that appear for a little while and then vanishes. Yet God has set eternity in the human heart. It amazes me, but I know many avoid the topic.