I was asked to review the radiotherapy plan for Marie when I noticed on the CT images that her entire left lung was opacified. It turned out to be a haemothorax, as suspected. Her malignancy had resulted in auto-antibodies rendering her clotting system defective.
Two weeks ago I first met Marie in the clinic. She came with her son, daughter and daughter-in-law. They were obviously concerned about their mum and wanted the best, yet they understood there was only so much Medicine can do. Marie was in her fifties, but she did not look so at all. She came in well-groomed; her cheeks and lips were rosy with mild makeup. She had the gentlest speech, and her smiles were small, but frequent and sweet.
Now Marie was on the hospital bed in the trolley bay. No makeup this time — her complexion was pale, her lips grey, her hair messy from prolonged bed-stay. But she was still soft-spoken, and her smiles were still lovely as before.
I slowly explained to Marie what I found. “Things are progressing quite aggressively… And I’m not sure how rapidly this is going to continue,” I said as I watched for her reaction. “I’m really sorry, Marie.”
“That’s ok,” she said with a smile. It was as if she had expected this all along. “As long as the children are ok,” she added in passing. I didn’t quite understand at the time, but my mind drifted, for an instant, to recall the image of her son, daughter and daughter-in-law during the first clinic consult. She passed away the next day in the hospital.
In the same week, I had a conversation with Kenny. Kenny was a young man from Hong Kong. He had a wife Yen, and together they have a 5-year old son, who couldn’t understand yet that his dad was dying from colorectal cancer.
In a matter of days Kenny went from walking to being wheelchair-bound. On the CT images, his whole abdomen was solid with metastases. We knew his wife, brave as she was, was struggling to care for both Kenny and their little child at home. It came the time when I advised for inpatient admission to the palliative unit. It may very well be Kenny’s last destination in this life, and I wanted to make sure he and his wife understood the situation.
I remember his wife was wearing a T-shirt with verses from the book of Phillipians on it. I asked her about it, and it turns out I knew the church they attended. I realized too that when patients have a faith and hope to hold on to, these grim conversations become so much easier. I asked how long have they been in Australia for. It was two years ago when they came with their young son, on a working visa.
“What is it that you do?” I asked Kenny.
“I’m a lecturer at RMIT…”
“Oh what do you lecture on?”
“Building construction,” he replied, then added after a pause, “But all of that doesn’t matter anymore, Joseph.”
I guess that’s true. The following day Kenny’s cancer perforated his bowels. He was transferred to a private hospital, and that was the last I heard of him.
These conversations with Marie and Kenny at their deaths’ door helped me put some things back into perspective.
Have you ever looked around and realized that the world is just replete with promises of satisfaction? Think about it!
Blockbuster movies, parties with friends, breakaway shopping sprees, travel trips, hunting for music, chasing good books, enjoying food, and all the colorful product advertisements everywhere – do they not all target at our search for satisfaction? And the world is just full of such promises of satisfaction – that it is blinding.
Many of them are short-lived. Some of them are lies. We all know. Yet it is easy to get lost, and in the process, all we end up thinking and speaking of is about ourselves. All of this is like “a chasing after the wind”, as the book of Ecclesiastes aptly puts it.
There is much more to say, but I’ll stop. It actually takes some effort to think about this in the context of our personal lives (yours and mine)! But tell me what you think.
This is a story during my week of attachment with the Paediatric Outpatient Clinics… (names anonymized, of course)
Clarice’s aunt was her carer. She had brought Clarice in due to concerns about her oppositional behaviour at home – trashing her scooter into windows, hitting her brother, skipping school, coming back home late without informing her aunt, and so forth, according to the referral letter.
But walking into the room was a surprisingly rather demure young teenage girl, dressed in pretty pastel colors with a little flowery handbag on the side. Perhaps she was just more reserved around strangers, especially before the doctor?
Her mom was in prison for drug abuse. Her dad had been gone for several years to somewhere nobody knew. Her aunt was single, but was taking care of two more children in addition to Clarice, all whom had to be taken away from their parents for child protection issues. She was really running quite tired, she said in our discussion, coming to her “end of wits” in trying to manage the behavioural problems in her house.
But we didn’t think that Clarice had any “medical problem” such as ADHD that we could address with medicines. The most we could do is to recommend her to give counsellors and child psychiatrists another try. I felt a little bad for what seemed to be like pushing the onus away, but it was perhaps the right thing to do.
At the end of the consultation when interestingly not much else could be said from us, the paediatrician turned to the teenage girl sitting quietly on her seat. “Clarice,” she said, “if there were three wishes you could make and they would come true, what would they be?”
“That I could have a hundred wishes more,” Clarice replied without too long a delay, but she laughed when she realized it was a silly answer.
“Um…, that I would never grow old,” she added with a self-conscious grin, “andddd….”
“… And that mom, dad and I can be together…,” she said after a pause.